Authors: Ali Pain, Cheryl Reed, Jan Dundon
Event: 2019 TheMHS Conference
Subject: Consumer and Carer Experience of the Victorian Mental Health Tribunal: Tribunal Hearing Experience (THE) Survey
Type of resource: Conference Presentations and Papers
Cheryl Reed is an evaluation and social researcher who has been working in co-design and the measurement of healthcare consumer experience for over two decades.
Ali Pain is the Consumer & Carer Engagement Officer at the Mental Health Tribunal.
Attending a mental health tribunal hearing can be a very stressful time for consumers and carers. We know the importance of consumer and carer lived experience as an indicator of how well a system is working and the outcomes it delivers for participants (Hansson, Bjorkman, & Priebe, 2007; Mohan & Kumar, 2011), but is it possible to obtain meaningful information from people who attend a tribunal hearing, or does their illness or attitude to the hearing decision overwhelm other aspects of their experience?
In 2015, the Victorian Mental Health Tribunal started a project to co-design an experience of hearing survey using the lived experience of the Tribunal Advisory Group and the Consumer and Carer Forum, as well as feedback from consumers and carers attending hearings and mental health service providers. The project has involved ethics approval to conduct qualitative research with consumers and carers who attended a hearing and a pilot test of the draft Tribunal Hearing Experience (THE) Survey. With the first implementation of THE Survey in late 2018, the results show the resilience of hearing attendees, their hopefulness for the future and opportunities for all service providers to work with consumer and carers to build better services.
Learning Objective 1: Co-design can be used effectively in developing research tools and methods as well as in reviewing recommendations and workshopping implementation.
Learning Objective 2: This topic shows that the level of psychological distress a person is experiencing does not necessarily limit their right or ability to provide meaningful feedback on the services they receive.
Hansson, L., Bjorkman, T., & Priebe, S. (2007). Are important patient-rated outcomes in community mental health care explained by only one factor?(Author abstract). Acta Psychiatrica Scandinavica, 116(2), 113.
Mohan, D. R., & Kumar, K. S. (2011). A Study on the Satisfaction of Patients with Reference to Hospital Services. International Journal of Business Economics & Management Research, 1(3), 10.