S38: Successfully engaging people with a diagnosis of borderline personality disorder to actively participate in research and share lived experience.

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By September 26, 2017 No Comments

Authors: Amylea (Mahlie) Jewell

Year: 2017

Event: 2017 TheMHS Conference

Subject: Reducing Stigma and Discrimination,Research & Evaluation Informing Practice,Trauma-informed care,Lived Experience, Recovery

Type of resource: Conference Presentations and Papers

Abstract: Examining the reasons for low levels of authentic consumer engagement in research of borderline personality disorder programs and lived experience, I share the common reasons of disengagement from a consumer perspective as obtained through a live study. Using best practice and trauma-informed techniques, my test study shows the differing cohort currently found in BPD research and explains the reasons for a lack of diverse and representative research cohort. Understanding the necessity of creating a safe space for consumers to tell their stories, I explore the power of acknowledging the historical unsafe spaces consumers have been immersed in. The goal of my presentation is to provide explanations for the lack of genuine qualitative diverse data in BPD studies and provide strategies to successfully engage consumers from a broad spectrum and allow the diverse and unique experiences of these people to be told in an impactful and respected way to aid the treatment programs to create a strong recovery community for people living with borderline personality disorder.

Learning Objectives
Learning Objective 1: Insight into the lack of consumer engagement with this specific diagnosis, methodology and practical information about how to ensure diverse and genuine qualitative data is obtained. The audience will be invited into the challenges and intricacies of the “borderline brain” and discover appropriate and positive ways to get the best outcome in their research, programs and treatment and interactions with consumers with a diagnosis of borderline personality disorder.

Learning Objective 2: Borderline Personality Disorder is one of the most stigmatised and misunderstood diagnosis in the mental health sector and the public in general. With a high prevalence in society and a high comorbidity occurrence, many services have been struggling to provide effective and positive treatment for people living with BPD. Current research outcomes are lacking qualitative data and much of the data that exists is skewed and/or contradictory. This is due to low participation rates in studies as well as high drop-out rates in follow-up studies. Accurate studies inform best practice and lead to better treatment outcomes within mental health services for these clients.

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