S34: LEAD & PANEL PRESENTATIONS: Consumer Co-Design (Social Justice)

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By December 2, 2022 No Comments

Authors: Raewyn Allan, Traci-Mae Nathan, Leigh Carpenter, Billie Morgan, Sheree Veysey, Magdel Hammond, Emily Preston, Jade Tang-Taylor, Kirsty Morgan, Jessica Reece, Stuart Wall, Belinda Berr, Elise Carrotte, Michelle Blanchard, Christopher Groot, Fincina Hopgood, Lisa Phillips, De Backman-Hoyle

Year: 2022

Event: 2022 TheMHS Conference

Subject: co-design, new zealand, leadership, lived experience

Type of resource: Conference Presentations and Papers

Abstract: LEAD PRESENTATION: Navigating Complexity: Kaupapa Maori Intensive Housing and Support
Raewyn Allan, Traci-Mae Nathan, Leigh Carpenter, Billie Morgan

Mahitahi Trust is a tūturu Kaupapa Māori Mental Health and Addictions provider based in Tāmaki Makaurau rohe.

We have developed three unique kaupapa Maori housing and support services of varying levels of intensity, to respond to the needs of those experiencing a range of co-morbidities (including neurodevelopmental conditions, cognitive impairment, acquired brain injury, chronic health conditions and; substance use conditions) who are poorly served by traditional mental health rehabilitative models of care:

1. Kotutuku Papakainga: 40 independent self-contained apartments with an onsite Papakainga;
2. Rapua Te Ahuru Mōwai (Rapua): a multi-agency initiative designed to transition 70 people with multiple needs from inpatient care to independent living and;
3. Te Paerangi: to transition 10 – 12 people with high and complex needs who otherwise would spend extended periods in inpatient care.

Guided by Ngā Pou E Waru the Kaupapa Herenga of Mahitahi Trust, we use a relational approach using principles of Whanaungatanga, Kaitiakitanga and Manaakitanga.

These mana-enhancing recovery-oriented services provide prioritised access to appropriate community-based accommodation to allow people to live with dignity in their own homes, not in facilities.

High levels of collaboration with our clinical partners effectively keeps people out of the hospital and, if readmitted, facilitate rapid discharges.

PANEL PRESENTATION: Codesign in an inequitable society: Creating the Emerge Aotearoa Lived Experience and Diversity Framework
Sheree Veysey, Magdel Hammond, Emily Preston, Jade Tang-Taylor

Codesign is deeply concerned with meaningful engagement, however in the context of people marginalised by racism, stigma and discrimination and societal power structures, how do we begin to mitigate these to allow people to feel genuinely welcome and able to participate?

In 2019 social service entity the Emerge Aotearoa Group embarked on a bold new strategy. It declared three strategic Pou (pillars: Māori succeeding as Māori, Lived Experience and Diversity are Privileged, and Thriving Pacific People as central, requiring of Emerge Aotearoa transformational shifts. Work was begun to explore how to action these shifts and, for the Lived Experience and Diversity pou a six-month co-design project was initiated.

Led by the expertise of codesign specialists Innovation Unit and an internal lived experience project team it was imperative to involve tāngata (people) served by Emerge Aotearoa and to ensure the worldview and needs of Māori and Pacific peoples were prominent.

This presentation shares insights and key organisational and team learnings about using codesign from the perspective of navigating power dynamics, navigating across cultures and reflecting on organisational learning edges. It will be of interest to those employing codesign with tāngata accessing services, particularly across large and diverse entities and population groups.

PANEL PRESENTATION: Building AOD Capability through Clinician-Consumer Co-designed Education
Kirsty Morgan, Jessica Reece, Stuart Wall, Belinda Berr

Building capability amongst nursing and medical workforce to care for inpatients who have co-occurring mental illness and alcohol and other drugs (AOD) needs is a challenge for public hospitals. Early engagement and referral to specialist services can assist in minimising complications arising from co-occurring substance use disorders (Charalambous, 2002). However, research has found that stigma towards people with alcohol or drug concerns is a significant barrier to early intervention and that changing clinicians’ attitudes is key (Haber PS & Riordan, 2021). This presentation will showcase a model that has been implemented at a Melbourne public hospital utilising an AOD clinical educator and AOD lived experience educator. Together they diagnosed key capability gaps related to caring for patients with co-occurring substance use disorders and have co-designed training content in response. Delivery of training is also co-facilitated to enable hospital staff to be exposed to people with lived experience of substance use disorder outside of their role as ‘patients’. Embedding a lived experience educator is transforming the way training is designed and delivered at the health service. Sharing our model will provide learnings for participants so they can consider application in their workplace settings. Emerging feedback from clinicians indicates that incorporating the patient experience in education encourages clinicians to reflect on how they interact with patients presenting with complex needs and further evaluations plan to assess its effectiveness in reducing individual-level drivers of stigma.

PANEL PRESENTATION: Co-designing a new podcast exploring how stigma affects people living with complex mental health issues
Elise Carrotte, Michelle Blanchard, Christopher Groot, Fincina Hopgood, Lisa Phillips

Audio-based media, including podcasts, show promise for engaging and educating audiences. The objective of this study was to design a new podcast, which itself aims to reduce listeners’ stigmatising attitudes towards people living with complex mental health issues. This study drew largely from Experience-Based Co-Design methodology.

After an information gathering phase, a Co-Design Committee was established. The Committee involved 25 members, with Peer Ambassadors, healthcare professionals, media professionals, and workplace mental health champions. Three focus groups were held via Zoom, plus ongoing conversations via instant messaging platform Slack. The focus groups focused on designing the podcast using virtual brainstorming and decision-making tools.

Participants discussed possible barriers associated with appealing to listeners, making the content emotionally resonant and engaging, and translation to listeners’ attitude change. They collaborated to identify the focus of individual episodes (areas where stigma and discrimination are common), episode storyboards that centralise lived experience narratives, and content principles (such as having clear calls to action and providing listener resources).

In conclusion, the co-design process allowed participants to design episodes that have potential to maximise strengths and minimise limitations of the podcast format. Once produced, the podcast will be evaluated for its impact on attitude change.

PANEL PRESENTATION: Exploring the 3 L’s of Experience - Lived Experience, Learned Experience and Leadership Experience
De Backman-Hoyle

This presentation starts with unpacking the term ‘Experience’ - is the term purely derived from a humanistic perspective? Can we suggest that all mental health Lived Experiences are of equal value? What about experience outcomes from a Learned Experience such as through mental health formal qualifications and specialisation? How does this type of experience and knowledge differ from the value of Lived Experience? Do the professional perspectives of learned experience hold more power, authority and overall consequences for the mental health sector than lived experience? Are there pros and cons to both? Are assumptions and risks identified more readily from one group or another? Is there currently segregation and is the potential of integration of lived and learned a real possibility?

A critical third L is the importance and impact of Leadership, both self-leadership and organisational leadership when needing to influence positive change within the mental health sector.

A final consideration of the presentation will be to imagine the possibility of a merger between all three L's at a systemic level, to avoid the risks of silo based 'L' as individual identities and categories of peoples, can we imagine a cross experience based model that role models lateral opportunities and that better encourages collaborative practices? We would like to think so.

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