Authors: Helen Glover, Katherine Boydell, Katherine Gill, Barbara Tooth, Anne Honey, Francesca (Franca) Coniglio, Justin Scanlan
Event: 2019 TheMHS Conference
Subject: The STELLER Study: Supporting the Transition into Everyday Life of Lived Experience Research.
Type of resource: Conference Presentations and Papers
Barbara is a Clinical Psychologist. She began working in mental health in 1985 on the Mental Health Crisis Team in the Illawarra region and has also worked in clinical psychology roles in a variety of clinical mental health settings. Barbara has also held academic roles. She is passionate about lived experience research informing mental health care and assisting others with lived experience of mental health challenges.
Kate Gill is a research scientist, a Registered Occupational Therapist and Mental Health Consumer Researcher. She is the Chair and founding member of the Consumer Led Research Network, now based at the Brain and Mind Centre, University of Sydney. Kate is the President and Founder of FND Australia Support Services.
Mental health lived-experience research illuminates the perspectives and experiences of people who live with mental illness. However, little is known about how useful consumers might find lived-experience research, nor what the best formats are to bring it to their attention. This study explores the translation of lived-experience research in the lives of people living with mental illness. The aims are to: develop a range of user-friendly formats to disseminate lived-experience research and evaluate the accessibility and usefulness of these resources via peer workers.
A staged design thinking approach was used to develop a translation strategy for lived experience research. Stage 1 consulted with consumers to understand their perspectives on lived experience research. Stage 2 involved refining the design aim and the research questions. Stage 3 generated ideas with consumers and mental health professionals. Stage 4 The team has worked with design students and peer workers to prototype a suite of resources tailored to individual settings and clients for the testing phase.
This study is the first to investigate the feasibility and usefulness of bringing the findings of lived-experience research to consumers. It will provide evidence about a potentially important source of information that can be used to facilitate their recovery.
Learning Objective 1 & 2: This paper will enable those present to:
(i) Identify the potential role that lived experience research has in contributing to and being accessible to people' in their recovery journey.
(ii) Understand how lived experience research, through arts based knowledge translation contributes to the wider mental health sector's body of knowledge.
References (i) Walsh, J. and J. Boyle, Improving acute psychiatric hospital services according to inpatient experiences: A user-led piece of research as a means to empowerment. Issues in Mental Health Nursing, 2009. 30: p. 31-38.
(ii) Faulkner, A., Principles and motives, in Handbook of service user involvement in mental health research, J. Wallcraft, B. Schrank, and M. Amering, Editors. 2009, Wiley-Blackwell: London.
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