S88: What is the lived experience of people who have had or continue to have ECT as they participate in daily life? How do people perceive and adapt to the consequences of ECT for their daily lives?

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By September 27, 2017 No Comments

Authors: Karen Wells, Nicola Hancock

Year: 2017

Event: 2017 TheMHS Conference

Subject: Lived Experience, Recovery,Research & Evaluation Informing Practice,Wellbeing

Type of resource: Conference Presentations and Papers

Abstract: This service-user led, qualitative study aims to better understand the experience of people living with Electroconvulsive Therapy (ECT). Specifically this research explores what people identify as the facilitators or barriers to living well after ECT.

This research provides evidence regarding the ongoing lived experience of ECT on daily life post and during maintenance treatment. It gives or amplifies the voices of people living with mental ill-health who have experienced ECT, acknowledging the expertise and knowledge gained through lived experience. It addresses the almost non-existent body of knowledge around ongoing life after or with ECT; the ways people are impacted and the ways they successfully manage in their daily lives.

Mental health systems internationally are shifting their focus from a clinical frame to a recovery orientated framework, this refers to the dialogue of living life well post or during on-going treatment experience. Ultimately findings of this study will inform better future service delivery and supports based upon the experiences and perspectives of service users. We will be presenting and discussing both the gaps in the current body of literature as well as the preliminary findings of this study.

Learning Objectives
Learning Objective 1: People attending this presentation will gain insight into the lived experience of people who have had or continue to have ECT as they participate in daily life. They will learn about the facilitators and barriers they identify to living well after ECT.

Learning objective 2: The perspectives and expertise gained from lived experience are currently missing and they are critical to future developments in the service provision and support of people both during or following ECT.

Charmaz, K. (2014). Constructing grounded theory: A practical guide through qualitative analysis (2nd ed.). London: SAGE.
Rose, D., Wykes, T., Bindman J., and Fleischmann, P. (2005). Information, consent and perceived coercion: Patients’ perspectives on electroconvulsive therapy. The British Journal of Psychiatry, 86, 54-59.

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